Unfortunately, children with SMA, their family and caregivers in our country were alone in searching for help and advice, for a long time. They even did not have access to the appropriate resources to find answers to their questions.

We try to organize these patients and their family in the Pediatric Neurology Research Center and Physical Medicine and Rehabilitation Research Center at Mofid Children’s Hospital. Our main focus is to provide information and to develop new therapies, and academic and scientific rehabilitation treatments.

With your help we hope this network provides the best and the most cost-efficient treatments and therapies.